A baby, the child, is a gift. But what if the gift comes in the form of a challenge. A challenge that would take every ounce of your energy, every second of your time and every waking moment in your day? It is not ordinary challenge. A challenge that requires both parents to be steadfast, patient and stron . A challenge so extraordinary that you know you need more than just the support and love from your family and friends.
Syahirah Yakub is my cousin’s daughter. I have known her to be a quiet, sweet and polite lady. So when I heard the news that she and her husband, Nabeel Salim Abdat, are seeking help to raise $3 million for their baby who was diagnosed with Type 1 spinal muscular atrophy, I was really quite surprised. “Are you sure?” “How can this be?” So many questions, And as I started reading more and more about Baby Zayn’s condition, I began to understand the magnitude of this situation.
So I will keep it short. You may read about this disease on the online media.I will link it at the end of this post.
If it takes a village to raise a child, then it will take the entire world to save a baby who is barely ready to breathe.
Donation Click Here: Ray Of Hope
” At 5 weeks old, Zayn was diagnosed with Spinal Muscular Atrophy (SMA) Type 1 – a genetic neuromuscular disease that causes muscles to become weak. People with SMA lose a specific type of nerve cell in the spinal cord called motor neurons that control muscle movement. Without these motor neurons, the muscles will not be able to receive nerve signals that make muscles move.”…Ray Of Hope
“On Aug 12, the seven-week-old boy was found to have Type 1 spinal muscular atrophy (SMA), a neuromuscular disorder that causes muscles to weaken. It can lead to declining motor functions a nd such issues as respiratory problems, scoliosis and osteoporosis, said an NUH spokesman.” The New Paper
“The youngest in Singapore to be diagnosed with Type 1 spinal muscular atrophy, a genetic condition of the central nervous system that affects nerves and muscles, which progressively worsens over time if not treated. ” TodayOnline